Capture your grief 2012

I initially decided to participate again this year because I find this project to be healing and eye opening. I started off strong but found myself having a hard time towards the end. It was actually in the day of self care. I was mentally and physically exhausted from a busy month so I decided to take a break. Part of me feels like I failed, whereas the other part of me knows the project is for me so there is no failing. Here are the days I completed:

Day 1: Sunrise- Titusville, Fl

With every new sunrise, I'm reminded it is a new day, a new chance to make a difference in this dark world. This is my 3rd year participating in this project. This year, I am in a new place. A place where I've found healing (and am still finding healing daily) but one where I am beyond honored to be given opportunities to help support others who are on this healing journey. 

I find these lyrics fitting to where I am currently and the topic for today, "We were born to be the ones, To show the faithless what we've done

And there's a fire inside, It burns like the surface of the sun."

Today, at the beginning of my third year of this project, like they sun, in on fire to help others through their journey. 

Day 2: Heart ❤️ I hold both of my beautiful daughters in my heart.

Helen Keller said “The best and most beautiful things in the world cannot be seen or even touched. They must be felt with the heart."

One of the best things to ever happen in my life was and is the birth of my first daughter, Avery Diane. And while we only had 6 short days with her, she will always be with me. She will always be part of me because she will forever be in my heart. I can no longer see her or touch her but every day I feel her with me, with each beat of my heart, she is here. 

Day 3: Before

Before Avery was born, it was just the two of us. Young, carefree, innocent, naive. Having fun, taking trips and experiencing the world. Neither of us had experienced true tragedy first hand. Neither of us knew just how much our world was going to be rocked. This photo was almost a year to the day the before Avery was born. It was our last summer getaway with friends before we would be forever changed, forever different. I look back at this couple and it feels like ages ago. We aren't these two naive kids anymore. 

Day 4: Now

This is what I and my family look like now. To the outsider, we look like a happy family of three but that teddy bear is more than a prop, it represents our 4th family member, Avery. On the outside, the us now and the us then look similar. 

But Avery's brief life has irrevocably changed the person I am. I am more sensitive, I love more deeply and I realize how short and unpredictable life can be. I am forever grateful for those who are currently in my life and accept the new me, and realize I will never be the old me again. I am content in my now, I have an amazing husband, my beautiful rainbow and a great support system. I continue finding healing daily. But it's not all sunshine and butterflies. 

At times I can be completely overcome by fear and anxiety. A fear so strong it can be paralyzingly. One words cannot even begin to describe. I just keep waiting for tragedy to strike again. I feel very jaded at times and find it hard to be optimistic in this very cruel world. 

I hate that life is broken down into a before and after but this is my life. And the 'now' me is driven to help others who are on similar paths. This isn't the way I dreamed my life going but I vow to use my experience to help others. 

Day 5: Journal

In the beginning I wrote, pen to paper, daily. I wrote to Avery and poured my heart out. Over time my paper journal turned to blogging. My blog is a way to not only express myself but to give others a glimpse into this crazy world. The good, the bad and the so often, very ugly. I found so many blogs helpful when I was starting on this journey. Even if my words touch just one person, it is worth sharing my heart and pain, open and honestly with the world. 

You can ready my blog entry for the day here:  http://missingavery.blogspot.com/?m=1

Day 6: Books

There have been many helpful books in my journey. I've posted then each year of this project. This year I wanted to share a book that I look forward to reading to our rainbow. This line page gets me every time. "You get to meet a lot of people in Heaven....and my big sister was so excited to see me that she wouldn't stop hugging me!"

Day 7: Sacred Place

Picking out Avery's headstone was surreal yet something we put a lot of thought into. It was the last and only tangible thing we were able to do for her. As odd as it was seem to many, I find peace visiting her place at the cemetery. It's a very beautiful space and her area and headstone are unlike any others there, unique and beautiful just like her. 

Growing up, I was always creeped out by cemeteries as I never went to them. It's crazy to think how different  Harper's life experience with cemeteries will be as they are part of her everyday, normal life. 

Day 8: Resources

There are many resources that have helped me along my journey in these shoes. These organizations have helped me learn to deal with these new shoes I'm forced to wear daily.  I am forever grateful that there are so many out there to help families like mine. 

A Pair of Ugly Shoes

Author Unknown

 

I am wearing a pair of shoes.  

They are ugly shoes. 

Uncomfortable Shoes.

I hate my shoes.

Each day I wear them, and each day I wish I had another pair.

Some days my shoes hurt so bad that I do not think I can take another step.

Yet, I continue to wear them.

I get funny looks wearing these shoes.

They are looks of sympathy.

I can tell in others eyes that they are glad they are my shoes and not theirs.

They never talk about my shoes.

To learn how awful my shoes are might make them uncomfortable.

To truly understand these shoes you must walk in them.

But, once you put them on, you can never take them off.

I now realize that I am not the only one who wears these shoes.

There are many pairs in the world.

Some women are like me and ache daily as they try and walk in them.

Some have learned how to walk in them so they don’t hurt quite as much.

Some have worn the shoes so long that days will go by

before they think of how much they hurt.

No woman deserves to wear these shoes.

Yet, because of the shoes I am a stronger woman.

These shoes have given me the strength to face anything.

They have made me who I am.

I will forever walk in the shoes of a woman who has lost a child.

Day 9: In Memory

Today was a hard day to decide what to post. I feel like daily I'm doing something in Avery's memory. Whether it's random acts of kindness, volunteering to help other baby loss families or just taking in the beauty of a sunset, I feel like everything I do is in memory of Avery. 

But one of the more tangible things that has been done in her memory is the building of Avery's Place. This playground was built solely based on funds raised at the 1st Annual Avery Diane Hanson Memorial Golf Tournament. The outpouring of love and support from our friends, family and strangers who took part in this tournament inspired us to hold a golf tournament in her memory annually. In addition to building Avery's Place, we've raised money for Molly Bears and SIDS research and are working to bring more support to families in our area. 

Day 10:  Support

Friends and family were a great source of support for us after losing Avery. We have great people in our life who will be there at any time for us. Whether we need to talk, cry or simply escape reality, there are so many who are there for us. But my biggest support, the one who truly knows what's going on in my head is my husband. 

He's the one who kept me going when I couldn't reach out to anyone else. He's the one who spent countless nights with me through the endless tears. He's the one who knew the answer to the question, "How are you doing?" He's my rock. He's my greatest support. 

Day 11: Alter

I don't really like the word alter. To me it implies worship. And while I love and miss Avery with all of my heart, I don't worship her. But I do have multiple spaces in our house where I've dedicated space to her. This space in our room is the only space dedicated solely to her. Everything here has special meaning to us. 

Flowers from her service, multiple pictures of her name taken all over the country, trinkets with her name we've picked up over time, the drum sticks I had made for my husband on his 1st Father's Day (which was the day after we buried her). 

This is one of the first things we see in the morning and the last we see when going to sleep at night. This is just another way that Avery is part of our everyday life. 

Day 12: Music - See Me Smiling by Yellowcard

There are so many songs I turn to on my journey. Lately, I've been spending lots of time in the car. My phone seems to shuffle to this song more frequently than the others and every time, my mind goes to Avery. 

She's always on my mind and in my heart. The pain is always there yet through it all, I hold her close and I am able to smile, I am able to live and I am able to love those in my life. 

Day 13: Season

Summer will always be Avery's season. Even though she was technically born before the official start of summer, summer had already started here in Florida. It seemed as if the day we were in the hospital to deliver her was the first day that the afternoon Florida summer storms started that summer.   It was hot, humid and the storms raged that afternoon and every afternoon she was here. The beginning of the summer storms and the summer heat will always remind me of her. 

Day 14: Light/Dark

Early on it seemed as if I would never be able to break out of the dark. And on many days, I didn't want to. But even on the darkest of days, there was always a small glimmer of light and hope. A hope and faith that this goodbye was just temporary and one day, Avery and I will be together again. 

If I were to say that my faith has remained strong through all of this I would be lying. I've questioned God a million times. I've begged for answers. I've pleaded for her back. And while none of this had happened, I do know that He still loves me and Avery. It will never make sense to me in this world, and I will probably spend the rest of my life asking why. But I do have light and hope in knowing that is is not the end. 

"So when the walls come falling down on me
And when I'm lost in the current of a raging sea.  I have this blessed assurance holding me. All I know is I'm not home yet.  This is not where I belong. Take this world and give me Jesus.  This is not where I belong." Building 429

Day 15: Community

Today is the wave of light and once again I am beyond touched at everyone who has lit a candle in memory of Avery and all babies gone too soon. Being part of the baby loss community is not a club I wanted to join but I am so thankful this community of strong families exists to support one another. Thank you to everyone remembering our babies today and every day. 

Day 16: Retreat

This week has been amazing but I have been very busy. I was able to tell Avery's story and share the TEARS Foundation at an infant mortality press conference, spent time remembering Avery and her friends by releasing sky lanterns into Heaven and today I get to facilitate my first Babyloss support group. 

Today my heart is full and heavy. I'm honored to be doing so much in Avery's memory but it can be a lot to take in. 

Today I will be retreating from doing too much but as always, our babies are in my heart.  

Day 17: Explore

The journey I am on is life changing and lifelong. Once you begin on this journey, there is no end. In the beginning, the path was rough, full of quick sand, sharp rocks and huge boulders. Every step was unpredictable. Some days, moving forward was impossible and others I was pushed further back. But as I've continued down my path, I've met others who have helped teach me how to scale the cliffs, escape the quicksand and mend my bleeding heels. 

Over time my path has leveled out. There are less jagged steep cliffs and sudden drops. The ground is more firm and the rocks are less sharp. There are still days the path surprises me with a twist, turn or sharp edge but most days I am navigating this journey fairly well and continue to explore where this journey leads. 

Day 18: Gratitude

There are so many people in my life that I am thankful for. So many friends and family who support us daily.  But today, I want to recognize those who we take for granted until we need them. The nurses, doctors, police officers, fire fighters and paramedics who daily keep up safe yet many times are not recognized. 

I will be forever grateful for all of those who were part of that awful day we lost Avery. I know they did everything they could. They showed us so much compassion and love during an awful time. Here is a blog post I wrote a while back about this: 

http://missingavery.blogspot.com/2013/12/gratitude-for-those-who-remain-faceless.html?m=1

Take time today to appreciate someone who does something you take for granted!

Day 19:  Give

For Avery's 1st birthday we asked friends and family to do random acts of kindness in her name. Since then our Avery's Light RAOK have grown. A friend had special coins made up to pass out when doing a RAOK and since having 1000 made last year, we had to have another set of 1000 made. Her RAOK coins have traveled all over the US and to other countries too. 

It's always a pick me up to perform a random act when I'm having a bad day or a day where I'm just really missing her. And the stories we hear back about how an act done in her name touched someone warms my heart. She may be gone but she lives on in love through us. 

Day 20: Breathe

Some days, all you can do is simply breathe. And that is enough. And when life is crazy, take time to enjoy the beauty around you.  You never know what you will see. This heart was in the clouds over my house yesterday. 

Day 21:  Relationships

Today my rainbow, Harper, turns 9 months. She's my second daughter but the world sees her as my first. Because of what happened with Avery, I'm not a cool and calm second time mom like those damn diaper commercials make you believe. I'm an anxiety filled, fearful, worrisome, paranoid, wish I could put her in a bubble and live there forever, second time grieving mom. I struggle watching Harper grow because I know the reality that if Avery were here, chances are, Harper wouldn't be. Wrapping your head around that is almost impossible. 

But because of losing Avery, I love watching her grow. While I can't believe it's going so fast, I don't find myself sad she's growing fast but rather joyful that she is in deed growing, something I don't get with Avery. Every milestone, round of shots, tooth and sleepless night is something I never got to experience before. 

Grief plays a role in all relationships. I struggle and worry about how it will affect Harper. How do I raise her to love her sister without her feeling like she's living in her shadow? Living with one in your heart and one in your arms is challenging in so many ways. 

Journal

As part of CarlyMarie's Capture Your Grief Project, I went back through my paper journal today (day 5 is journal). And it really brought me back to those very dark days following Avery's death. The pages are tear soaked and there is so little hope in my words. I had no hope, I could see no light, the world was simply a cruel place. 

In those early days I would have told you I would always be completely and utterly distraught. I would never find joy or happiness again. It's been 2 years and 4 months (tomorrow) since she was born and Sunday will make 2 years and 4 months since she left us. And in that time, I've evolved, I've changed. 

The babyloss journey is one where you are constantly changing and evolving as you continue on your journey. Sitting here, thinking about the changes I've gone through is crazy. And to be able to recognize that though this journey I will be forever changing in who I am and where I am on this journey and be content with that is well, big.  

Early on, I didn't want to hear that the good days would eventually outweigh the bad, but they do.

Early on, I didn't want to go a day without tears staining my pillow because somehow that would mean I missed her less, but that happened. 

Early on, I didn't want to hear that the world keeps turning, but it does. 

As time has passed, the gaping wound has scabbed. I've come to realize that it's ok that I have good days more often and that I don't cry myself to sleep every night. I needed that early on. But in time I also needed to realize those actions aren't my only connection or outward way I show that I love and miss Avery. This world is cruel but it doesn't stop for me. It keeps spinning. And I can either choose to let it spin without me or start spinning with it. 

Now, I've realized I can live here in the present with her in my heart. I can smile and laugh and still love her. I can have joy in my life without feeling guilty or that I am leaving her behind. 

I'm so thankful that as I travel down this path, I've found others to help me along my way. To help me continue to evolve in my grief and continue to keep Avery with me in my everyday life. 

Your Story Matters

Your Story Matters

Avery's Story Matters

Every baby's story matters. No matter how brief, their story matters. 

They all deserve a voice and we as their parents should be able to say their names, share their stories and talk about them without fear or worry about what others are thinking. Here I am 2 years, 3 months and 10 days since losing my daughter and I still cringe when I have to meet a new person. Not because I have to speak the awful words, "my first daughter died," but because I have NO idea what response will come after I share Avery's story. Will the person brush her off and end the conversation as quickly as possible? Will they genuinely care about her story? Will they try to fill their level of discomfort with some 'profound' statement that causes more harm than healing? It's always a gamble, my heart always on the line. 

But it's a gamble I take and will continue to take because her story matters. And I want to use her story and share her story to break the silence; to help the subject of pregnancy and infant loss no longer be a taboo subject that people run away from. I want to educate people. I want them to know that I am one of many. I am 1:4 and they probably know many others like me. I want to help change the way society responds to that awful phrase "my daughter died." Instead of running away in fear of the conversation, I want people to feel comfortable to say "I am sorry, tell me more about her." And continue the conversation. 

Avery's story didn't turn out the way I planned. Not even close. There was no first day of kindergarten. No college. No successful career where she changes the world through some amazing career. But she is making a difference in this world. 

She changed me. She made me a mom. She has inspired me. She will keep me from staying silent. Together, she and I will help others feel comfortable sharing their own stories. Her story matters. My story matters. Our story matters. Your story matters. And I will continue sharing our story to help break the silence. 

Photo credit: Cathy Hartman, co-leader of the Tears Foundation of Florida, great supporter, friend, and baby loss advocate. Thanks Cathy for the inspiration. 

Bleeding Heart

And just like that, we are a week away from Avery's birthday. Her 2nd birthday. Her second birthday spent in Heaven. How is it that's it's been 2 years already? It just doesn't seen possible. 

And with June only a day away now, I'm back in 2012.  Remembering and reliving the last week of my pregnancy. The sweet time I had with Avery in my arms and that awful morning. I'm still in shock that at this time just 2 years ago life seemed so perfect. Little did I know how upside my world would turn in less than 2 weeks. 

These days leading up to her birthday and angelversary are hell. The thin, fragile stitches I've been able to slowly sew over the gaping hole in my heart to keep from completely bleeding out are unraveling. My wounds are splitting open all over again. The pain feels so fresh, so raw like its 2012 all over again. 

I want nothing more than to crawl in bed, cover the windows and spend the next two weeks hiding from the real world and just let the pain have it's way. As crazy as that may sound, it would be so much easier just to wallow in my pain than try to hide it. It's absolutely exhausting to function when your heart is being broken all over again; to put on a smile, to go through the motions of life when all you want to do is hit rewind and go back. 

I know I cannot go back, I can only go forward. I have to let my heart bleed but I also have to keep working to mend the wound so I don't bleed out. Somehow, even through a bleeding heart, I am surviving. Even if these next 2 weeks feel like they will tear me apart, I've learned over the past 2 years, they won't. 

Every day, I miss her. Every day, it hurts. Every day, my heart bleeds. Yet every day, I'm surviving. 

Back to Work

Monday marks the end of my maternity leave. And I am absolutely dreading it. If you would have asked me my feelings about being a stay at home mom before Avery was born, my response would have been that it's not for me. Prior to June of 2012, I was very much career driven. I would never been able to imagine staying home with my kids all day. I thought I would go stir crazy. At that time, I very much found a lot of my identity in my work. It was part of who I was. 

Going back to work after losing Avery was hard. She gave me a brief glimpse into motherhood. Returning to work after losing her was wrong in so many ways. It wasn't the return I imagined. I was back sooner than planned and on the outside nothing had changed. I got up alone, got ready alone and left the house alone. It was just wrong. She should have been there with me, I should have been stressing about getting both of us ready, I should have been taking a different route to work to drop off at daycare. Mentally, I was checked out. I didn't want to be there. I had no focus, no drive, I was still grieving deeply and beyond exhausted. Over time, I got back into the swing of work. But my heart never fully was back into it. Work no longer held my identity like it had in the past. I was no longer driven mainly by work, it was no longer who I was. Instead I became a mix of career and bereaved mother. 

Now with Harper my mindset has changed so much more. I would give up my career in a second to be a stay at home mom. To be one of those moms who goes to mommy and me groups, to be one of those moms who has time to make my own baby food, to spend all day with Harper-loving her, teaching her and watching her grow. No part of me is ready to go back. I feel so guilty that I'm leaving her. I'm so overwhelmed with anxiety about returning, I've been making myself sick. I. Don't. Want. To. Go. 

Never would I have imagined I would lose my drive for my career. But truth be told, I have. Going back is going to be the hardest thing I've done since we had to say bye to Avery. I don't know how I'm going to get through each day. I don't know how I will stay focused and do the level and quality of work I once did. I don't know how I'll leave her every morning. I don't know if I'll be able to put in long hours or handle the stress like I use to. That's not who I am anymore. I'm no longer, Crystal the HR professional. Now, I'm Crystal, the mother of two amazing girls. 

I know so many women balance work and motherhood but as I sit here, holding my sleeping rainbow, I really worry about losing this time with her. There aren't enough hours in the day already and now I'll be spending 8+ hours a day away from this precious girl. 

Motherhood has changed me yet again and I wouldn't have it any other way. I just hope both of my girls know that I do it for them. 

22 Months

Avery's 2nd birthday is 2 months from yesterday. How is that even possible? It still feels like it was just yesterday I was pregnant with her. Yet at the same time it's been 2 long years. Many say time heals all wounds, if that were the case, (which I know it isn't), how much time is supposed to heal a wound like this? For those who believe this trite statement, I can confidently tell you, It's been 2 years and the pain is still very real, I am not healed. 

Yesterday a song came on the radio and it brought me right back to the early days after Avery died. The days where it hurt to breathe and I wanted to hide under the covers everyday. Almost two years, and the pain is still very much present. My heart is broken still and it aches and longs for her. Every. Single. Day. 

Last night I internally debated if I would have rather known what was going to happen on her 6th day. Would I have been any more prepared to deal with the heartache? Would I have lived in each moment more, absorbing each and every second we were given? Or would I have been so overwhelmed with knowing what was coming that I would have just been worrying the whole time, plagued with what was coming? I'm sure parents who've lost have felt this way too. Those who knew their time was short I'm sure have thought about how it would have been if they didn't know and others like me wonder how they would have done more had they known. After debating scenarios in my head, I snapped out if it. The truth is, neither scenario is better because in the end, we are still without a huge piece of our hearts. 

I'm not sure what the point of this post is. I've just rambled. I still feel so lost without Avery. And it's really starting to hit me that her birthday is quickly approaching. Another year has flown by without her here. Another year of missed milestones. Another year of living through the pain. 

Time does not heal, it just pushes us further away from what we had but closer to one day being back together. 

One day. 

One day we will reunite. 

One day we will reunite and be a complete family again. 

Until that time, my heart will ache and that piece marked Avery will always be missing. 

I see her

You may not see my oldest daughter but I do.

I see her in the beauty of a setting sun,

I see her in the butterfly's carefree dance,

I feel her in the ebb and flow of the ocean waves,

I see her in the whimsical firefly's flickering light,

I see her in the awesomeness of a starry sky,

I feel her in the warmth of the sun on my face,

I see her in the vivid colors of a blooming bouquet,

I see her everywhere I go and feel her in everything I do. 

You may not see her or feel her but everyday I do. 

Save a place for me

This song pretty much sums up how I've been feeling. 21 months and the pain is still fresh, still real and cuts so deeply. Every day I still wake up with only one daughter at home. Every night I go to bed and I only get to kiss one one of them goodnight. Every day, it's like saying goodbye all over again. 

One day, one sweet day we will all be together...until then, I know Avery is saving a place for all of us. 

Save A Place For Me

Matthew West

Don't be mad if I cry

It just hurts so bad sometimes

'Cause everyday it's sinking in

And I have to say goodbye all over again

You know I bet it feels good

To have the weight of this world

Off Your shoulders now

I'm dreaming of the day

When I'm finally there with You

Save a place for me, save a place for me

I'll be there soon, I'll be there soon

Save a place for me, save some grace for me

I'll be there soon, I'll be there soon

I have asked the questions why

But I guess the answer's for another time

So instead I'll pray with every tear

And be thankful for the time I had You here

So You just save a place for me, save a place for me

I'll be there soon, I'll be there soon

Save a place for me, save some grace for me

I'll be there soon, I'll be there

I wanna live my life just like You did

And make the most of my time just like You did

And I wanna make my home up in the sky

Just like You did, oh, but until I get there

Until I get there

Just save a place for me, save a place for me

'Cause I will be there soon

Save a place for me, save a place for me

I'll be there soon, I'll be there soon

Don't be mad if I cry

It just hurts so bad

SIDS-It wasn't our fault!

I feel the need to start this post by stating my intention. This post is intended to inform not criticize lack of knowledge. 

It was recently brought to my attention that people still question the facts surrounding Avery's death. Specifically, the reason for it and whether or not Eddy and I were to blame in any way. At first I was extremely upset and angry that people could question this. The thought that anyone would possibly think we did anything wrong absolutely killed me. However, after thinking it over and removing my emotions from the situation, I've come to realize, these questions are based from ignorance and a true lack if knowledge not real judgement. People want cause and effect.  They want to know what caused Avery to no longer be here. After all, there has to be a reason right? Babies don't just due! WRONG! And if you aren't educated about SIDS or know that was ruled the cause of her death, I can see how you may have questions. So, let me take a minute to provide some education. 

First, let me start by saying again, the medical cause of Avery's passing was ruled SIDS by the medical examiner.  SIDS stands for Sudden Infant Death Syndrome. SIDS is found to be the cause of death in infants after a thorough investigation into the death, including full medical examination and full police investigation is completed. SIDS is ruled the cause of death when there is no other explanation for the passing.  This means all other reasons for the death are ruled out including health/medical reasons, suffocation, accident, etc. 

There was nothing found physically wrong with Avery that caused her death medically. She was otherwise healthy. There was also nothing found as part of the police investigation which involved individual questioning of Eddy and myself and an investigation of our home, including her sleeping area. Therefore, it was ruled that this did not happen because of something we did. We are in no way at fault for her death. 

Unfortunately, they don't know what causes SIDS yet so there is no absolute way to prevent it from happening. There is lots of research being conducted to find the cause with most recent evidence pointing to a chemical imbalance in the brain stem. Because they still don't know what SIDS actually is, there are no tests or cures. There are only some guidelines for things to help lower the SIDS risk, but they do not 100% prevent SIDS.

These prevention include placing the baby on their back to sleep, sleeping the baby in the parents room but in their own sleep area, eliminating loose pillows, blankets, breastfeeding, eliminating exposure to cigarette smoke and leaving a fan on in the room. We took every precaution given with Avery and yet, it still happened to us. Again, there is no way to prevent SIDS 100%. 

As you can see, SIDS is still a big mystery but under no circumstances was Avery's death in any way something we did or something we could have prevented. Please remember this when dealing with families of SIDS deaths. As hard as it may be to wrap your head around the lack of cause, it's even more difficult for parents. Not a day goes by that we still don't wonder why and what if even though we know we couldn't have changed anything. We don't need the extra scrutiny from others looking down on us as if we did something wrong. Instead, we need support and love. 

I'll end this post with some other quick facts from the CJ Foundation for SIDS:

SIDS claims the lives of almost 2,500 infants in the US each year - that's nearly 7 babies every day.

SIDS deaths occur unexpectedly and quickly to apparently healthy infants, usually during periods of sleep.

SIDS is not caused by suffocation, choking, or smothering.

SIDS is not caused by child abuse or neglect.

SIDS is not contagious.

SIDS occurs in families of all races and socioeconomic levels.

SIDS cannot be predicted or prevented and can claim any baby, in spite of parents doing everything right.

This website has lots of good information:  http://www.cjsids.org. 

She's Here

Harper Isla Hanson was born via scheduled csection on January 21st at 7:23 am. She weighed in at 8lbs and was 20 1/4"

Her delivery went amazing and we heard her first cries within just a few minutes of the surgery starting. Hearing those cries put my mind and heart at ease. She was finally here. After they cleaned her up, my husband was able to bring her to me and lay her on my chest while they finished the surgery. It was amazing not being automatically separated once she was born. Having her right there on me, crying, gave me such a sense of peace. She roomed with us the entire hospital stay and only left our side the total of maybe an hour for tests. 

We are home now and she is doing fantastic.  We are head over heals in love with her. It's amazing how much you can love someone instantly. She is perfect and has brought so much happiness to us already. I'm still in awe every time I look at her.  

Having her with us, even with all of the joy she is bringing to us, is an emotional roller coaster. I miss Avery more than ever.  I feel her absence even more.  I worry about Harper so much. In the first week I couldn't sleep. I was afraid if I did, I would awake to that awful nightmare all over again. We have a breathing monitor but I was afraid to use it. Afraid it would sound in the middle of the night and afraid of what the outcome would be. I'm absolutely terrified of the night. Once the sun begins the set, the anxiety creeps into my mind. I am worried about everything.  Every cough, hiccup and noise in the middle of the night worries me. But she's doing great and I have to keep telling myself that. 

Today, Harper is 19 days old. Today and every day, Avery remains 6 days old. Harper has more than tripled her sister's age. And while I am beyond grateful that Harper continues to grow and thrive, I didn't anticipate the emotions I would feel daily as we experience with Harper what we didn't get a chance to with Avery. Every blessed moment with her is amazing but there are so many times   I find myself staring at Harper and wondering what Avery would have been like. I wonder what it would be like with a 20 month old and a newborn. I wonder how they would interact. I wonder if I would be so neurotic. I wonder if I would be more frustrated with two crying so many thoughts and questions run through my mind as I look into Harper's eyes. Questions I will never know the answer to, questions that will always fill my mind and always leave me wondering. 

I'm a mom again and it's a wonderful feeling. I am full of so much love and pride for both of my daughters it often brings tears to my eyes. Life will never be as I once expected but I am so grateful to be able to be a mom to two beautiful girls. 

Choosing to Embrace Joy, Peace and Happiness

The day that felt like it would never arrive, is tomorrow. Tomorrow our rainbow, Avery's sister, will make her grand debut. Surprisingly, I am rather calm. At least for now. I've spent the last 9 months working towards finding a balance between my grief and my joy. For so long, I felt guilty for being excited about Harper's arrival. I felt if I was excited for her, I was somehow turning my back on Avery.  Knowing I would have to balance parenting my two daughters in completely different ways was a hard concept to comprehend. How does that work?

You see, when you lose a child, life stops. It seems like happiness will never be part of life again. And honestly, you don't want happiness. Slowly, you find a way to smile and laugh without guilt. You realize it's not that you aren't still hurting and the pain is completely gone but that you must still live. Slowly but surely, you get back into a routine without feeling like you're moving on without them. Eventually, you find a way to incorporate them into your every day life while functioning. You find a way to a new normal and you work with all of your strength to hold it together (most days).  

But all of that quickly changes when you add a new baby into the mix.  Your mind doesn't know what to do with this change to what you've just accepted and your life. It's one thing figuring out how to live life again, it's a whole other thing to try wrapping your head around parenting a child in Heaven and a child on earth without guilt. Slowly, over the last 9 months, I've changed the way I think. Instead of worrying myself over letting Avery down, I'm embracing the joy and the gift we are being given. 

It's not an easy thing to do. Everyday I have to consciously choose to block out the doubt, the pain, the fear and the worry and let in the hope, the joy and the peace God is giving me again. I have to redirect my thoughts when the panic and 'what ifs' start in on me. If I let them start, they will consume me. They tear me apart.  I will lose my footing and fall face first. I know we are very blessed to have the chance to be parents here on earth again but I have to consciously make the choice to embrace and focus on just that. 

I know I'm not guaranteed anything with Harper. She could leave us just as quickly as Avery but if that's where I focus my energy, I lose out on the here and now. Today, tomorrow and everyday moving forward that God allows Harper to stay with us is a day I want to be completely present. I want to embrace each happy moment and not let the doubt and fear and worry and what ifs rob me of what I have in front of me. I want to live in the now. 

This will be a hard road. It will be much easier said than done. I know I will have many tearful breakdowns and many worry filled sleepless nights. My hope is that God will continue to fill me with peace so I can enjoy what is in front of me. And I've accepted that it doesn't mean I'm negating Avery and what she brought to me. It doesn't mean we are leaving her behind. Rather, we are all choosing to move forward as a family of four. Keeping her and all of the light and love she brought into our lives with us each and every day. 

It still breaks my heart that I won't see her and Harper grow and play together. I'm scared Harper will look just like her yet afraid they won't look anything alike. I will be an overprotective mom. Her first year will be full of over the top precautions. I don't know how I'll ever let her leave my arms. I don't know how I'll leave her when it comes time to go back to work. I don't know how I will sleep. But I do know I will make a conscious effort every day to appreciate every moment I have with her. 

Please pray for us tomorrow as Harper enters this world. As much as I am calm now, I really have no idea where my head will be tomorrow. 

"For I know the thoughts that I think toward you, saith the Lord, thoughts of peace, and not of evil, to give you an expected end." Jeremiah 29:11

Christmas 2013

Last Christmas we ran away. It was exactly what we needed. It didn't feel like Christmas. We weren't forced into family traditions without Avery by our side. Honestly, if I wasn't 35.5 weeks pregnant, we probably would have run away again this year. And boy I wish we could have. 

For most of the big events since losing Avery, the days leading up to the event are normally more of a drain than the day itself. The anticipation and anxiety of what the day will be like take their toll, leaving the actual day generally not as bad as I had built up in my head. Christmas this year, however was different. I have been so busy over the past few weeks, I had pushed the thoughts about Christmas to the back of my mind. I knew it would be hard, but I didn't work myself up over it. This made Christmas Eve and Christmas day much harder than I prepared myself to face. 

Being forced into family traditions was absolutely heartbreaking. I made it a total of 15 minutes through our Christmas Eve service at a church before I had a mini anxiety attack and ran out of the church hysterical. Christmas Eve service is something I normally love and look forward to. However, it was a very I your face reminder of her absence. She should have been there with me in my arms. This is a tradition I looked forward to but absolutely hated being there last night. It killed me.  It's the things we do every year that are the knife to the heart. The traditions kill me. She is supposed to be a part of them. Here with us, not just in memory. 

Today, my old friend anger made it's presence known again. I woke up immediately angry. I wanted to sleep as late as possible but was wide awake at 6. She's supposed the be here. I'm supposed to wake up with her. We're supposed to have a tree with tons of presents for her. We're supposed to sit together and ready the story of Jesus' birth as a family. It's not supposed to be this way and it infuriated me. The littlest things had me on edge. I was dreading being around anyone and knew that it wouldn't take much to set me off. From the start of the day, I wanted to just crawl back in bed and avoid everyone and everything. But I couldn't, I had to out my game face on and face the traditions head on. I'm not going to lie, the day sucked. 

Nobody should have to spend time at the cemetery visiting their child on Christmas. Nobody should have to debate whether or not to include their dead child on gift tags. Nobody should have to try to speak to everyone as little as possible on Christmas for fear they will snap, the anger finally taking complete control.   Nobody should feel jealousy towards the happy families, complete and together on Christmas. It's hell. It's completely awful to spend Christmas this way.

I'm absolutely exhausted. I am so ready for the day to be done. I am ready to crawl in bed and have a good cry until I fall asleep. I'm ready for this pain to be over but I know that it will always be here in some form. Parts of Christmas may become more bearable over the years, but there will always be the lingering ache from the missing piece of my heart. 

Nothing will ever be the way I once pictured in my perfect world. And it hurts so much knowing I will never be able to change that. But I am thankful that God sent his son, Jesus, to be born and most importantly to die for us. Because of this, I know that while I cannot bring Avery back to me, one day, one amazing day, we will be together again. For this I am thankful. This keeps me going even when I feel like throwing in the towel. 

Turning Pink into Purple

Taking Avery's room apart to make it Harpers was so much harder than expected. Over the last 17+ months I've had a love hate relationship with that room. After we lost Avery, I hated going into her room. I was a stark reminder of a future lost. Over time, it became my sanctuary. I would spend hours sitting in the rocking chair, writing to her and reading. It became a place where I felt close to her. It was her room. But as the weeks turned into months, I found myself in the room less and less. It became a place where we kept her belongings and momentous we had gathered. 

In the last 2 months, Harpers things have slowly been added and honestly the room was a cluttered mess. This weekend was the weekend to make the transition. To transform Avery's room into Harper's room. Thanksgiving night we worked to clear it out so we could paint in Friday.  I was doing well until I had to take down the wall decorations. The decorations I spent hours picking out and putting up. I lost it. I felt like I was taking her down to put her away to be replaced by Harper.

It got worse the next day when it came time to paint. Avery's beautiful pink was going away, being replaced by Harper's pretty purple. Painting made the transition permanent. It became so very real. To make matters worse, the paint didn't seem to be going on well, my husband was really frustrated and both of our emotions were running high. Half way through, we were both questioning why we were even repainting. I felt absolutely horrible.  Painting really wasn't necessary. Why did I feel the need to cover Avery up? After many tears and much talking, we both found peace with giving Harper her own room. As much as Avery deserves to always be part of us, Harper also deserves her own identity too. After coming to grips with the fact that paint or changing the room isn't getting rid of Avery, the day went much better and the paint turned out beautiful. 

Saturday was time to get everything in order and put up Harper's decorations. The day went pretty well. It felt nice getting the room ready for Harper's impending arrival. We put up the art on the walls, washed the new bedding and blankets and organized the closet. 

I was doing well until it came time to change out the bedding. I will always absolutely love Avery's jungle bedding. As I folded up the blanket to put away for good, I felt like my heart was going to explode. She didn't get to use many of her belongings in her six short days but every night we got her ready for bed by laying her in her crib to dress her in her pajamas. She used her bedding, even if only very briefly, and there I stood, in a now purple bedroom, folding her perfect blanket and putting it in a bin. The perfect decorations for the perfect room all ended up in one Rubbermaid bin that will go in the attic. That's it. Avery's room no longer exists. And I feel like the hole in my heart is gaping wide open again. 

I know it's just a room. It's just a place. Her room is not her identity. But when all you've had is six days, it's hard not to cling to physical things. It's hard not to tie part of her identity to the things that were part of her short life. It's hard not to feel like once again I am being pushed further away from her. 

And at the same time, I feel guilty for feeling so terrible about changing the room. There really was no part of getting Harper's room ready that was fun or exciting. Getting ready for Avery was such a happy time. Once again, nothing is the same the second time around. But poor Harper deserves my happiness and excitement over her arrival. And so far, I really haven't been able to find that excitement. I am so afraid I will let her down. 

So here I sit. Torn between two worlds-one pink, one purple. With a love for both but with no idea how to balance both. I love my daughters dearly and want them both to feel that love. 

Avery's pink Jungle room. 

Harper's purple room (still a work in progress)

Giving Thanks

It's still hard many days to be able to see past what is missing in life and see what is still here to be thankful. There isn't a day that goes by that I don't sit and wonder what life would be like if Avery was still here with us. 

The holidays make that especially hard. Watching families celebrate with each piece in tact, seeing the million posts on Facebook of baby's first Thanksgiving, reading how everyone is thankful for their kids. It's enough to make a grieving parent want to lock themselves away from reality. 

Last year, that's exactly what we did. Las Vegas was out anti-Thabksgiving. It was what we needed at the time. But this year, we are back to reality. Back to turkey and football with the family. Back to the stark reality that this is NOT how we envisioned Thanksgiving when we were pregnant 2 years ago. But today, instead of focusing on the life I'm missing, I want to take some time and focus on all that I do have to be thankful for this year. 

I am thankful for...

God's unending love and grace. He has kept me going even on the darkest days. And His promise that one day, we will all be together again. 

Avery-my beautiful girl and the time we had with her, the things she has taught us and for her unending love.

My amazing husband who picks me up when I can't get up on my own, who walks this journey with me and who loves me and our girls unconditionally. 

Harper, my sweet and stubborn rainbow baby. The one who has brought hope back into our once dark and dismal lives. Avery's little sister, who will know all about her big sister in Heaven. 

Family who has stuck by outside through everything. Those who still speak her name, those that don't think we should be "over it" already, those who have kept us standing. 

Friends, old and new, who are like family. They never cease to amaze me with just how much they care for us and her and will continue to help keep her memory alive.

Even in our darkest moments, we still have lots to be thankful for. ❤️